thinking random thoughts. I loved doing this when I was a kid, especially on weekend mornings when there was no school to worry about. And I can still do it now. Itâs one of the few things that my illness hasnât taken from me.
I hate to admit this, but my bedroom doesnât look like it belongs to a seventeen-year-old. With my Darth Vader radio and my bookshelf full of comicsâIron Man, Spider-Man, Captain Americaâit looks more like the room of a geeky preteen. Thereâs a Rubikâs cube on my desk and a Star Wars chess set. Thereâs also my Pinpressions toy, which is like a sandwich made from two squares of transparent plastic, one of them studded with hundreds of sliding pins. If you press your face against the back of the thing, it pushes the pins out the front, making a funny-looking mold of your features.
Next to this toy is my digital camcorder, which I used to bring to school every day so I could take videos of Ryan and Brittany and everyone else who crossed my wheelchairâs path. And next to the camcorder is my prize possession, an official NFL football from Super Bowl XLVI, which in my opinion was the greatest football game ever played.
Because the New York Giants were in the Super Bowl that year, my parents let me throw a party in our living room. I was eleven at the time and my doctor had just told me Iâd have to start using a wheelchair soon, so the party was a kind of consolation prize, something to make me feel better. I invited every kid Iâd ever played touch football with, sixteen of them in all. Ryan was there, of course, and so was Brittany, who was a pretty decent kicker and receiver in those days.
We ordered half a dozen pizzas and swilled enormous quantities of Pepsi and screamed at the television set for three-and-a-half hours. A few of the kids cheered for the New England Patriots, but most of us were New York fans, and we went nuts when the Giants scored the winning touchdown with fifty-seven seconds to go. Ryan lifted me off the couch and carried me piggyback across the room, running in joyful circles around the coffee table while I clung to his shoulders.
Dad took a picture of us, and the next day I pasted the photo to a big poster I made to celebrate the game. The posterâs still hanging on my bedroom wall: Giants 21, Patriots 17. Below the score is a colored-pencil drawing of Giants quarterback Eli Manningâitâs a pretty good likeness, if I may say so myselfâand the photo of me and Ryan, our faces flushed and manic from so much Pepsi.
On the opposite wall of my bedroom are five more homemade posters commemorating the next five Super Bowls. The Super Sunday party became an annual tradition at our house, and some of the games were almost as exciting as the Giants-Patriots matchup, but none of the parties was as good as the first. For one thing, fewer people attended each year. Only five kids came to our house for Super Bowl XLIX, and I got the feeling that most of them didnât want to be there. Dad had pleaded with their parents, forcing them to drag their kids to the crippled boyâs party.
But the biggest disappointment came the following year, when I was in ninth grade. Ryan had joined the Yorktown High football team by then, and Coach McGrath hosted his own Super Bowl party, strictly for team members. When Ryan told me about it, he was practically crying, but I assured him it was okay. I said I was getting tired of the parties anyway. That year, only two people came to my house: Brittany and a younger boy who also had muscular dystrophy. Dad had met the kidâs parents during one of my checkups at Westchester Medical.
The next yearâwhich turned out to be my last at Yorktown HighâI didnât invite anyone. I didnât even want to watch the Super Bowl. But five minutes before kickoff time, someone rang our doorbell. Dad went to answer it and found Brittany standing on the doorstep, holding a bag of